Empowering Communities: Supporting Epilepsy Awareness, Resources and Education.
Epilepsy Warrior Submission Form
The Purple Belt Club was created to encourage and uplift kids living with epilepsy.
Inspired by Kayven’s love for karate, kindness, reading, and adventure, this club celebrates bravery, strength, and belonging.
Parents and guardians are invited to submit their child’s photo and story to join the Purple Belt Club and be featured as an Epilepsy Warrior on our website and social media.
Free Epilepsy Support Resources from KHH
At Kayven’s Helping Hands, we want families navigating epilepsy to know they are not alone. In honor of Kayven, we provide several support items to children and families at no cost thanks to the generosity of our community.
If your child is living with epilepsy or going through EEG testing, you may request one of the following resources by completing the form below.
Kayven’s Care Kit
A comfort and resource package designed for children with epilepsy. Kits include educational materials, activities, and comfort items to help keep kids busy during long EEG testing, hospital visits, or medical appointments. This is the full kit and includes the Purple Belt Club kit and Duck. Also includes an age/ability approiate book about Epilepsy, KHH coloring book & other donated activities to keep you child occupied. * Kit contents may vary based on donations and availability but will always include a comfort item/plush, education materials, books, coloring book and activities.
Kayven’s Purple Belt Club Kit
The Purple Belt Club celebrates the strength of kids living with epilepsy. Inspired by Kayven’s love of karate, this kit includes an Epilepsy Warrior headband, a Purple Belt Club certificate, Ninja minibook, KHH Bookmark, KHH Duck and sticker encourage confidence and resilience. They will also have option to submit story to be posted on KHH socials to help boost awareness and provide encouragement
EEG Hats
Our soft cotton EEG hats help hold EEG leads in place during testing and are animal themed to bring imagination to medical testing. These are handmade from KHH volunteers from upcycled t-shirts.
Complete the form below to request one of these resources and our team will follow up with you.
Privacy Note
The information you share on this form is used only to fulfill your request and send your items. Kayven’s Helping Hands will never sell or share your personal information. Your privacy and your child’s privacy are important to us.
Community Partner Resources
Our Epilepsy Community Partners are organizations and groups that share our heart for supporting individuals and families affected by epilepsy. Each partner offers unique programs, services, and resources that help improve quality of life, increase understanding, and reduce the risks associated with seizures. From education and advocacy to medical support and family services, these partners are working every day to make sure no one faces epilepsy alone. We are proud to highlight and share their work—please take a moment to check them out, learn what they offer, and connect with the resources that best fit your needs
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Seize Your Future: Provides Scholarships for students with Epilepsy.
Rainbows United: enhances the lives of children with special needs and their families by bringing together community resources and providing customized services.
Kansas Society for Children with Challenges: families who need our help because of the high cost of necessary equipment and services to keep challenged children safe, help them interact with the world, manage their medical situations, and more.
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Organizations that offer broad information, education, advocacy, and community support for people with epilepsy and their families.
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Groups focused on medical care, specialists, research, and clinical guidance.
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Organizations centered on raising awareness, changing policy, and educating the public.
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Partners focused on seizure safety, monitoring, and prevention of epilepsy-related deaths.
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Groups serving families affected by specific epilepsy-related conditions
STXBP1 Foundation (STXBP1-related epilepsies)
CDKL5 Alliance (CDKL5 deficiency disorder)
Rare Epilepsy Network (connects families to many rare epilepsy condition groups)
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Organizations created in memory of children or loved ones, focused on family support and healing.
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These organizations offer financial support, grants, or assistance programs to help people with epilepsy and seizures manage treatment costs, travel for care, medications, devices, service or seizure response dogs, and other related needs:
Epilepsy Foundation Assistance Programs – The Epilepsy Foundation offers a variety of assistance programs, including medication cost support, travel assistance funds (up to $3,000 for medical travel), and ride-share support for medical appointments.
Danny Did Foundation Grants – Provides financial assistance grants to adults and families affected by epilepsy to help cover costs related seizure alert devices.
JoshProvides Epilepsy Assistance Foundation – Offers grants for epilepsy-related needs such as medical services, transportation and travel to appointments, seizure alert and detection devices, and seizure response dogs.
Chelsea Hutchison Foundation – Provides grants for seizure response dogs and epilepsy monitoring equipment, helping families access devices that improve safety and seizure management.
Epilepsy Alliance Florida – Seizure Dog Fund – Offers a scholarship fund (up to $5,000) to help cover the cost of obtaining a seizure response dog for eligible individuals.
Oscar Project / Michael R. Zupancic Seizure Response Dog Fund (EAWCP) – Provides financial support and guidance to individuals seeking specially trained seizure response dogs.
NeedyMeds & Patient Assistance Programs – Not epilepsy-specific but valuable: organize information on free or low-cost medications and patient assistance programs through drug manufacturers and nonprofits.
Service & Assistance Dog Partnerships (various providers) – Organizations like Canine Companions and Paws With A Cause may provide trained service dogs at no or reduced cost, which can be life-changing for people with epilepsy.
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Coming Soon!
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Purple Day / Epilepsy Awareness Day — March 26, 2026 — A global day of awareness to educate others and reduce stigma around epilepsy.
National Epilepsy Awareness Month — November (every year) — A month-long celebration with advocacy, education, and community action.
International Epilepsy Day — Observed every February (second Monday) to highlight epilepsy issues worldwide.
SUDEP Action Day-Observed the 3rd Wednesday of October. October 21, 2026
Seizure First Aid Certification
We are dedicated to empowering individuals and communities with the tools and knowledge to support those affected by epilepsy. This year, we are focusing on encouraging 100 local caregivers, educators, childcare workers, kids’ activity directors, community members—to complete the Seizure First Aid Certification course provided through the Epilepsy Foundation. This training provides essential skills to recognize and respond to seizures with confidence.
After completing the course, participants can submit their certification here. As a token of appreciation, they’ll receive a Kayven’s Helping Hands Epilepsy Awareness ribbon to celebrate their commitment to making a difference.
Join us in creating a community that is informed, prepared, and supportive. Together, we’re making empowerment possible!
Access Resources, Support, and Care for Epilepsy
Kayven’s Helping Hands Foundation is here to connect you with vital resources and support for navigating life with epilepsy. Whether you’re seeking information for medical providers, mental health services, specialized epilepsy centers, public transportation options, medication assistance programs, or virtual support groups, we’re here to help.
Submit a request through our resource inquiry form to receive tailored information and guidance on available local and virtual resources. Together, we can ensure individuals and families have access to the tools they need to thrive.